
This was our third pregnancy. Almost
3 years earlier my wife gave birth to
Ellie (24 wks) and 18 months ago she
gave birth to Lane (29 wks). Ellie
struggled for 6 hours before the Lord
took her home. Lane spent 6 long weeks
in the NICU but came through a healthy
and happy boy.
Thirty
two weeks and 5 days at 10:09 on 05-16-2004 my wife
gave birth to Graham Bennett via cesarean.
He was 3 pounds 7.5 ounces and 15 1/2
inches long. Up until 32 weeks and 2
days we were convinced this would be our
first pregnancy that would go full term.
The first 31 weeks things were going
extremely well, and there were no
problems or issues to be concerned
about. But then Tonia started to have
severe itching, the type that no matter
how hard you scratched it made no
difference. She was having trouble even
sleeping at night because of the
constant need to itch. It was around
this time that her blood pressure
started going up.
On Thursday May 13th we found out the
reason why Tonia had been itching so bad
over the past week; the results of her
recent blood test showed that she had
Intrahepatic cholestasis (ICP) which
means her liver was storing bile and not
sending it properly into the intestine.
Bile is dangerous for the baby and there
is nothing they can do to help the body
remove it. The level of bile does not
matter, it is either there or not type
of thing. It does not cause birth
defects but there is a 10 in 1000 chance
we could lose the baby IF we do nothing.
However, in the 1000 cases studied
stillbirth occurred late in the
pregnancy usually after 36 weeks. So the
current recommendation is to have the
baby delivered as soon as the lungs are
mature enough. Of the cases that
delivered before 36 weeks the rate of
stillbirth was more like 2%. Thursday
night was a tough night for us, because
we were so convinced that this baby
would be our first to make it to 40
weeks. At this point the plan was to
schedule a cesarean or maybe even try
natural birth at 35 weeks giving our son
the best chance of avoiding stillbirth
and far enough along to avoid most of
the struggles of prematurity.
On Friday May 14th Tonia was asked to
come back for another evaluation at
which time our Perinatoligist became
more concerned about Tonia's toxemia
(pre-eclampsia or high blood pressure).
Tonia was hovering between 158-165 over
98-110. And for the first time they
noticed that Graham was no longer
gaining weight. His abdomen was starting
to decrease in size which is an
indication that he was not getting the
nutrients he needed to sustain growth.
The body will begin to redistribute
nutrients to the brain when there is a
deficiency and one of the first signs of
this is when the abdomen beings to
decrease in size. If Tonia's blood
pressure stayed above 160 systolic or
110 diastolic then the risks of
delivering the baby early are outweighed
by the dangers of abruption (tearing of
the placenta away from the uterous). As
a result of these new findings Tonia was
checked into the hospital that morning.
We went from thinking we were going to
make it to 40 weeks to coming to grips
with 35 weeks to having to hope 32 weeks
will be long enough. We were both heart
broken and a little scared but we knew
we were in good hands, and we had the
comfort of knowing how Lane turned out
and the fact that Graham made it almost
a full month longer than Lane. We also
had 48 hours to allow the steroid shots
to take hold and help Graham's lungs
develop.
The cesarean went smoothly and since I
was little more collected this time
compared to Lane's birth, I remembered
to bring my camera and was able to take
some pictures and video of Graham's
birth.
Graham came out crying and looked just
like Lane. It felt like a dream because
I was standing in the same spot, and in
the same emergency room that I was in
just 18 months earlier with Lane coming
into the world in this exact same
fashion. It was almost unbelievable at
times that this was happening all over
again.
All 3 of
our children were
born prematurely for completely
different reasons. Ellie was sort of an
unknown, but the doctors had guessed
that she was a possible abruption, or
just one of the many unknown reasons of
preterm labor. Lane came early because
of placenta previa and bleeding, and
Graham was due to pre-eclampsia and
cholestasis of pregnancy.
Graham struggled a little bit his first
week and had to be put on a ventilator,
but he quickly turned around after the
first week and progressed very rapidly.
He went through many of the same hurdles
as Lane did, and similar to Lane he
continued to jump them faster than
predicted. Similar to Lane, Graham had
no bleeding on the brain, and had his
PDA close without the need for surgery.
Learning from experience we signed to
have a PIC line put in on the first
night to avoid having new IV lines put
in every few days or in some cases more
than once a day. A PIC line is a special
IV that goes in the vein similar to a
normal IV but instead of just an inch or
two it travels all the way up the arm,
up and around the shoulder and down into
the heart. With Lane we waited a week or
two before signing the release for the
PIC line because we knew it was a
dangerous procedure. But after seeing
how often they had to replace the
standard IV lines and how painful it was
for Lane to be stuck with the large
needle and how painful it was for mom
and dad to watch this happen we decided
it was necessary.
Like most preemies Graham had a mild
amount of jaundice and required some
lights for a few days to help him
recover. But fortunately unlike Lane,
Graham has not had a problem with apnea.
As I write this letter Graham is still
in the NICU (3 weeks today) and doing
extremely well. He is now 4 pounds 4
ounces, in an open air crib (more like a
small plastic tub), and no longer being
fed with a gavage tube. He is breast
feeding for 10 minutes twice a day and
bottle feeding the rest of the time.
There is a very good chance he will be
coming home in the next week.
Both Tonia and I are going to the
hospital as often as we can, and
fortunately my current job is just a few
blocks away from the hospital so I get
to see Graham on my lunch breaks and on
my way home from work. Tonia tries to
get over to the hospital at least twice
a day, but unlike when we had Lane, we
now have an 18 month at home, so we do
not get to be with Graham as often as we
would like.
Again we owe a great debt of thanks to Pomona
Valley Neonatal Intensive Care Unit and
the incredible nurses and doctors that took
care of Graham. We are so fortunate to
be living in time where technology and
medicine is capable of saving babies
like ours. It is hard to imagine a
better hospital staffed with better
nurses than PVHMC. In my mind they are
among the best in the world.
Many of the nurses and doctors
remembered us from when we had Lane and
we were excited to have all of our
favorites that took care of Lane also
take care of Graham. In fact our primary
nurse for Lane is also our primary nurse
for Graham.
We are so fortunate to have so many
family and friends praying specifically
for Graham and the nurses and doctors
that are watching over him. We have been
blessed again to have this precious gift
of life and we give thanks to God for
Graham and his continued progress.
Dennis & Tonia Levens